2026 DCC Schedule of Events
Sunday, July 26, 2026
-
Registration & Exhibitor Hall Opens 1:00 PM
-
DCC Celebration: The 2026 debra of America Gala
Monday, July 27, 2026
-
Educational Sessions
-
Exhibitor Hall
-
Kids Zone Activities / Entertainment
-
Evening Social Event
Tuesday, July 28, 2026
-
Educational Sessions
-
Exhibitor Hall
-
Kids Zone Activities / Entertainment
-
Evening Social Event
Wednesday, July 29, 2026
-
Educational Sessions
-
Exhibitor Hall
-
Kids Zone Activities / Entertainment
-
Conference Closing Remarks
Hotel Information: Attendees with the 4-night package will check out on Thursday, July 30. Check-in at the Los Angeles Airport Marriott begins at 4:00 PM; check-out is 11:00 AM.
What We’re Covering This Year
Medical Care & Wound Management
- Infection management & antibiotic stewardship
- Non-healing wounds
- EB care management for adults
- Hands, feet & high-friction areas
- Pain management
- Anemia in EB
- Bone health in EB
- Operating room & ER care
- Hand surgery
- Itch & EB
Research & Innovative Therapies
- How gene & cell therapies work today
- Genetics of EB
- ART-EB update
- UK EB data project
- Abeona Therapeutics/ZEVASKYN ® Update
- Chiesi Global Rare Diseases/FILSUVEZ ® Update
- Krystal Biotech/VYJUVEK ® Update
- Paradigm Therapeutics Update
- RHEACELL Update
- Skin cancer (SCC) in EB
Mental Health, Family & Relationships
- Coping with chronic illness (parents of young children)
- Medical trauma in EB
- Loss across the lifespan
- Reflective listening / communication
- Friendship, dating & relationships
- Intimacy & sexual health
Everyday Health & Living with EB
- Nutrition (kids & adults)
- GI care (kids & adults)
- Dental care (kids & adults)
- Eye care
- OT/PT & Physical Activity
- Palliative care
- Cannabinoids: evidence & use
Workshops & Practical Guidance
- Wound care workshops (Simplex, Dystrophic, Junctional)
- Benefits & disability navigation
- Insurance appeals lab
- School advocacy (504s, IEPs)
- Pregnancy, childbirth & early care
- Building your EB care team
Community, Support & Real-Life Topics
- Support groups by EB type
- Caregiver support
- Sibling support
- Teen sessions (including separate spaces)
- Age-based workshops (teens, young adults, adults)
- Government advocacy
Full Agenda and Speaker Bios Forthcoming.
What Our Sessions Look Like
Traditional sessions led by a solo presenter or co-presenters focusing on best practices, forward-thinking strategies, and practical resources in a structured, large-group setting.
Highly engaging, hands-on sessions designed for deeper learning and practical skill building. These workshops encourage active participation through demonstrations, small-group discussion, guided activities, and opportunities to apply new ideas or techniques in real time.
Facilitated small-group conversations where participants share experiences, challenges, and practical insights with others who share similar EB-related journeys.
Structured discussions featuring three or more thought leaders from diverse backgrounds. Moderated by a facilitator, these sessions provide multiple perspectives on key topics.