Natural History Study of DEB Eye Complications

This research study is being done to learn more about eye problems in people with Dystrophic Epidermolysis Bullosa (DEB). Some people with DEB get wounds on the surface of the eye (called corneal abrasions) which cause symptoms like eye pain, sensitivity to light, watery eyes, and blurred vision. Krystal Biotech (the Sponsor) is conducting this study to better understand how often corneal abrasions happen and how they affect the lives of people with DEB. This research will support the development of potential new eye treatments for DEB. 

STUDY PARTICIPATION

Participants will complete online questionnaires, including: 

• Baseline questionnaires to determine eligibility (approximately 10-15 minutes) 
• Weekly symptom diary (approximately 5 minutes per week) 
• Monthly survey (approximately 5-10 minutes per month) 

Compensation will be provided for all completed questionnaires and symptom diaries.

YOU MAY QUALIFY IF:

• You have Dystrophic Epidermolysis Bullosa (DEB) or are the parent/guardian of a child with DEB that is at least 6 months old 
• You (or your child) have had at least 2 corneal abrasions in the last year 

To participate in the study, please click the link below. If you have more than one person or child in your family who may be interested in participating, please reach out to debeyestudy@krystalbio.com.

Register for the Study