The latest news from debra of America, from organizational happenings and inspiring stories to expert insights and research updates.

4
Oct
debra of America Patient Registry Epidermolysis Bullosa

debra of America Launches Registry for Individuals and Families Diagnosed with "The Worst Disease You've Never Heard Of" Epidermolysis Bullosa

debra also announces a new partnership with public relations and creative agency Fearey to raise awareness for Epidermolysis Bullosa and all those who are affected 

2
Oct
Dr. M Peter Marinkovich debra of America Annual Benefit Epidermolysis Bullosa

Dr. M. Peter Marinkovich honored with Jouni Uitto Impact Award

On Saturday, November 4, 2023, Dr.  M. Peter Marinkovich of Stanford University will be honored as the inaugural recipient of the Jouni Uitto Impact Award at the debra of America Annual Benefit at the stunning Georgia Aquarium in Atlanta, GA.

27
Sep
The Assistance Fund Epidermolysis Bullosa debra of America

New Financial Assistance Program for EB Patients and Families

In partnership with debra of America, The Assistance Fund (TAF) has launched a financial assistance program that will help patients and families affected by Epidermolysis Bullosa (EB).  

15
Sep
Arlene Pessar debra of America Epidermolysis Bullosa

In Memory of Arlene Pessar, debra of America's Founder

Arlene Pessar debra of America Epidermolysis Bullosa