The latest news from debra of America, from organizational happenings and inspiring stories to expert insights and research updates.
News & Blog
7
Oct
EB Community Member, Megan Gosselin, to be Honored with Spirit Award
On Saturday, October 26, 2024, Megan Gosselin will be honored with the Spirit Award at the debra of America Benefit at SoFi Stadium in Los Angeles, CA.
3
Oct
Paradigm Therapeutics to be honored with Partners in Progress Award
On Saturday, October 26, 2024, Paradigm Therapeutics will be honored with the Partners in Progress Award at the debra of America Benefit at SoFi Stadium in Los Angeles, CA.
17
Sep
Living Creatively with Epidermolysis Bullosa (EB)
Featuring Sahar Kazouini and Dr. Amy Paller
Interview By: Dr. Vijaytha Muralidharan and debra of America
12
Aug
Shining Light on EB: A Young Advocate’s Heartfelt Mission
At just 9 years old, Rayleigh is uplifting the EB Community with her heartfelt project, “Shining Light on EB.” Living with Epidermolysis Bullosa Simplex (EBS), she has embraced her platform as the current USA
5
Aug
Navigating School with EB: A Parent's Guide to a Successful School Year
Stores are swapping out displays of sunscreen and pool floats for pencils and paper. It's time to transition from the lazy days of summer, back to the classroom.
25
Jul
Meet debra Intern, Leandro!
Hi everyone!
My name is Leandro, and I am a 16-year-old student at Washington International School. I am excited to share my journey and experiences as an intern at debra of America in celebration of National Intern Day.
16
Jul
Chiesi Global Rare Diseases Joins debra as Diamond Sponsor for the 2024 debra Care Conference
debra of America is thrilled to announce Chiesi Global Rare Diseases as a Diamond Sponsor of the 2024 debra Care Conference (DCC) on July 28-31 in Atlanta, GA.
8
Jul
Krystal Biotech Joins debra as Diamond Sponsor for the 2024 debra Care Conference
debra of America is thrilled to announce Krystal Biotech as a Diamond Sponsor of this year’s debra Care Conference (DCC) in Atlanta, GA on July 28-31.
18
Jun
Expert Guidelines for Using FDA-Approved Vyjuvek™ (B-VEC)
In a recent article in the Journal of Dermatological Treatment, Dr. Amy Paller, Dr. Anne Lucky, Dr.
13
Jun
FDA Director Dr. Lola Fashoyin-Aje to Keynote 2024 debra Care Conference (DCC)
debra of America is thrilled to announce our 2024 debra Care Conference (DCC) Keynote Speaker: Dr. Lola Fashoyin-Aje, MD, MPH! Dr.