News & Blog

Right now, a lawsuit called Texas v. Becerra is putting vital disability protections at risk. Seventeen states are suing the U.S.

As we reflect on this past year, we are filled with gratitude for the incredible support that has fueled our mission to improve the lives of those impacted by Epidermolysis Bullosa (EB). 2024 was a year of progress, innovation and connection! 

At debra of America, we are proud to lead efforts that advocate for improved healthcare access for those living with Epidermolysis Bullosa (EB) and other rare diseases.

Exciting News from Abeona Therapeutics — The U.S.

In this blog post, we’re thrilled to spotlight Elisabeth Pol, a NICU Assistant living with Recessive Dystrophic Epidermolysis Bullosa (RDEB), who has channeled her passion for learning into a unique and impactful project.

On Saturday, October 26, 2024, we gathered at the stunning SoFi Stadium in Los Angeles to celebrate a new dawn for Epidermolysis Bullosa (EB) at the debra of America Benefit.

Abeona Therapeutics announced today that it has resubmitted its Biologics License Application (BLA) to the U.S.

On Saturday, October 26, 2024, Dr. Anna Bruckner will be honored with the Jouni Uitto Impact Award at the debra of America Benefit at SoFi Stadium in Los Angeles.

The debra of America Spirit Award is given each year to an adult and a young person with EB who have not only faced the challenges of the disorder but have made a positive impact through awareness, fundraising, or by leading exceptional lives.  

We are thrilled to announce an exciting expansion of our Board of Directors at debra of America.