News & Blog

Today marks #GivingTuesday, a global generosity movement unleashing the power of people and organizations to transform their communities and the world.

As we approach #GivingTuesday, a day dedicated to the spirit of generosity and giving back, we are delighted to shine a spotlight on a special supporter and advocate —Willistine Lenon, Vi

Big news from Abeona Therapeutics —The U.S. Food and Drug Administration has granted Priority Review for the Biologics License Application for Pz-cel (prademagene zamikeracel), which means that they are fast-tracking their decision on whether to approve it.

On Saturday, November 4, 2023, we celebrated the incredible strides being made in Epidermolysis Bullosa (EB) research and the progress that is yet to come at the debra of America Annual Benefit at the stunning Georgia Aquarium in Atlanta, GA.

BioMendics is set to be honored with the Partners in Progress Award at the debra of America Annual Benefit on Saturday, November 4, 2023 at Georgia Aquarium in Atlanta, GA.

On Saturday, November 4, 2023, Eliksa Therapeutics will be honored with the Partners in Progress Award at the debra of America Annual Benefit at Georgia Aquarium in Atlanta, GA.

In a world obsessed with unattainable beauty standards, there are individuals like Ariana Covarrubias who not only challenge these norms but shatter them entirely.

On October 8, 2023, ten dedicated TEAM DEBRA runners conquered the grueling 26.2-mile course at the iconic Bank of America Chicago Marathon!

On Saturday, November 4, 2023, Analise Cardullo will be honored with the Spirit Award at the debra of America Annual Benefit at Georgia Aquarium in Atlanta, GA. Get your tickets here! 

In Loving Memory of Susan Craighead (1964-2023)