The latest news from debra of America, from organizational happenings and inspiring stories to expert insights and research updates.
News & Blog
6
Aug
Stronger Together: Highlights from the 2026 debra Care Conference
More than 900 members of the Epidermolysis Bullosa (EB) Community gathered in Los Angeles from July 26-29 for the 2026 debra Care Conference (DCC), creating four unforgettable days of education, connection, support, and hope.
25
Jun
FDA Grants Fast Track Designation to Promising EBS Treatment
BioMendics has received FDA Fast Track Designation for their investigational gel treatment, BM-3103 (TolaSure® Gel™) for Epidermolysis Bullosa Simplex (EBS).
4
Jun
Meet Carly and Kathryn: Joining Us at Par for a Purpose!
The countdown is on for Par for a Purpose: The debra Golf Classic, taking place Sunday, October 4, 2026, at the stunning Grayhawk Golf Club.
7
Apr
New Look, Same Mission: debra of America's Brand Identity Evolves
In 2013, debra of America introduced the logo and visual identity that many of you have come to know. It served us well through years of growth, advocacy, and tireless work on behalf of the Epidermolysis Bullosa (EB) Community. But the EB landscape has since changed, and so have we.
16
Mar
Running Miles for Miles: How One Dad is Taking on NYC for the EB Community
This November, Malcolm Stewart will take on 26.2 miles at the TCS New York City Marathon as a proud member of #TEAMDEBRA, carrying with him the spirit of his son Miles who lives with Epidermol
10
Mar
A New Bill Introduced in Congress Could Improve Wound Care Coverage for the EB Community
A new piece of legislation introduced yesterday, March 9, 2026, in the United States House of Representatives could help improve access to essential wound care supplies for individuals living with Epidermolysis Bullosa (EB).
4
Feb
Legislative WIN for the EB Community!
This week marks a significant milestone for children and families affected by Epidermolysis Bullosa (EB) and the broader rare disease community.
17
Dec
Take Action Today: Help Restore the PRV Program
Our Epidermolysis Bullosa (EB) Community is facing a major barrier to new treatments. The Rare Pediatric Disease Priority Review Voucher (PRV) Program, which incentivizes companies to develop therapies for very rare conditions, has been expired since December 2024.
2
Dec
Maryland Prescription Drug Affordability Meeting: How the EB Community Can Get Involved
Maryland’s Prescription Drug Affordability Board (PDAB) is holding an important online meeting on Monday, December 8, 2025, to discuss drug pricing in the state.