When you have questions about EB, it helps to have an expert to turn to. Sometimes people just want access to healthcare information, resources, support, or even just a calm voice to help settle concerns.
Whether you’re worried about an upcoming surgery, need help learning how to bandage a certain area, or want to ask a question that has been on your mind, our EB Nurse Educator can educate you and help answer questions.
EB Nurse Educator Program
Access to the right information is vital to the overall health of you and your child. At no cost to you, our EB Nurse is here to answer your questions as they relate to many areas of Epidermolysis Bullosa (EB) care.
To connect with the debra of America's EB Nurse, please complete the Participant Request Form below. For additional questions, email nurse@debra.org or call 833-DEBRAUS (833-332-7287).
All calls and emails are kept completely confidential, and common topics include:
- Treatment options for primary and secondary complications of EB
- Palliative care
- Wound care
- Bandaging techniques
- Genetic testing
- Clinical trials in progress
- Physician referrals to related professionals
- Symptoms, medications and side effects, and more
Related Resources
EB Care FAQ
We've compiled a list of Commonly Asked Questions that our EB Nurse Educators have received from the Community.
Learn More
How To: Care for Blisters
Blisters occur in most forms of EB. We offer helpful suggestions on how to care for them.
Learn More
"Ask the Nurse" Blog Posts
Check out our collection of "Ask the Nurse" Blog posts that highlight a range of commonly asked questions that our EB Nurse Educators receive.
Learn More*Please note that all medical information given by debra of America is for informational purposes only. Our information is not intended to substitute the care and guidance given by a qualified physician. All regimens of care should be discussed with the patient's physician. Always check with your physician prior to starting any medications or treatment regimens.