EB Awareness Week Social Media Toolkit

Help spread the word about Epidermolysis Bullosa (EB) Awareness Week (October 25–31) with our Social Media Toolkit!

Download ready-to-use graphics and suggested post copy to raise awareness and support for the EB Community.

How to Use this Toolkit:

Copy and paste our suggested social media posts (or write your own!) and share them on your pages.
Download and share our images and graphics.
Add our hashtags for more visibility: #EBAwarenessWeek #EBWeek #WeFightEB #EpidermolysisBullosa
If available, add a short image description (alt text) to every graphic so your posts are accessible to people who use screen readers.
Tag debra of America so your followers can learn more about EB and our work:
Follow debra of America and reshare our EB Awareness Week content throughout the week.

Suggested Posts — Facebook, Instagram & LinkedIn

Copy and paste a post below, or write your own with similar messaging, and share it on your pages:

Post 1

"It feels like fire is beating me up." This is how one brave girl describes living with #EpidermolysisBullosa. This #EBAwarenessWeek, help me spread awareness — share this post and learn more at debra.org/ebweek. #EBWeek #WeFightEB

Post 2

It’s #EBAwarenessWeek! Join me in raising awareness about #EpidermolysisBullosa, a group of rare disorders that cause the skin and mucous membranes to be extremely fragile. Even minor friction, heat, or trauma can cause painful blisters and open wounds. Learn more at debra.org/ebweek. #EBWeek #WeFightEB

Post 3

About 200 children are born with #EpidermolysisBullosa every year in the United States. This #EBAwarenessWeek (Oct 25–31), I'm raising awareness of this rare group of disorders that cause extremely fragile skin. Find out more at debra.org/ebweek. #EBWeek #WeFightEB

Post 4

Imagine your skin tearing from a hug. From the seams of your clothes. From simply being held as a baby. That's daily life with #EpidermolysisBullosa. This #EBAwarenessWeek, help me make sure no one faces it alone. Share this post → debra.org/ebweek. #EBWeek #WeFightEB